And the Merry Bells Keep Ringing (Mostly)

We are still doing really well...I was remembering last year forcing ourselves to put up a tree and do the shopping, this year we have a beautiful tree, put up several weeks ago, the whole house is decorated and we are really happy...mostly--there are still moments--like hanging Sophie's baby's 1st Christmas 2005 ornament on the tree...of course she wasn't born until January 2006, but my plan was to have her here by Christmas!!! It is so much better though and despite little moments of pain I am really enjoying this holiday season (as my credit card bills will surely show in January!)
If there is one gift I could give this year it would be to let other parents out there who are suffering through their first holiday without their precious children know that it does get better. It takes work, it is still painful, but you will enjoy your life again. The biggest challegne to getting there for me has been accepting that I don't have to feel guilty about feeling happy. Moving on does not mean forgetting, Sophie will always be a part of our life, not just for Mike, me and the girls, but for everyone who knew her, or supported us. You never know when you might just be having the best day cruising on the highway singing Feliz Navidad at the top of your lungs and the next thing you know you think of your child and you burst into tears...but these moments occur less often now and we take time every single day to realize the amazing life we have. People wonder if I have a hard time around babies, I don't--I love them. I held my friend Mary's baby for a long time Saturday night (5 weeks) and she was so warm and soft and sweet, but it didn't make me pine for Sophie, it made me so happy for Mary and Mike that they have his amazing little being to hold, to watch grow, to keep them up all night!!!! No, my pining for Sophie is truly centered around me, our house, our memories......
Thanks again for loving us......

Snowy days and Turkeys always make me cry?

Wow---I wouldn't have thought that Thanksgiving was going to be hard for me, but I was sad the whole week. The day itself was good, lots of family and friends, a wonderful bird, if I do say so myself (alas the much anticipated Turducken never showed...perhaps a light fingered Fex-Ex employee had a wonderful dinner on us....Regardless it was a lovely day. The only crying I did was on a walk I took earlier in the day before our guests arrived...just general missing Sophie sadness....

So much has been going on, I have been wanting to post but just haven't felt the inspiration. Anne Marie had an echocardiogram and a full spinal X-ray last week, just to make sure that she doesn't have any of the other symptoms of Heterotaxy, which the genetics doc seems to think is what is going on with both girls..a mild expression of those genes. I am thankful we are not planning on having any more children, I can't imagine how stressful that pregnancy would be. The doctor thought a 1 in 4 chance of the same thing or worse happening again...yikes. I am hoping Sophie's case will make it into the big Heterotaxy study at Baylor, but I am not hopeful...both kids have "mild" expressions. So little is known about these conditions. I have read that Heterotaxy may account for up to 1% of all newborn deaths...that could be up to 40,000 babies per year in the US alone. I know there is so much competition for research dollars...but this seems huge. I sure hope Annie can get some answers before she had kids (if she has kids). I must get going on the asplenia screen. I would LOVE to hear from other parents whose kids have asplenia but none of the other common symptons...how many are there?

I guess in the end I am thankful that both girls haven't experienced major illness (OK you don't get much sicker than Sophie did...but I mean prolonged) I am thankful that I had Sophie to hold for almost 16 months (plus the 10 months I carried her)...and I am thankful that I have Annie and Mike to love and to hold and to get me through all of this.....Rachel too, it's just that she is being so "teenager" right now (I hear you snickering Mom!)